Media
Thanks to participation from various physicians, researchers, and SHINE Syndrome Families, we have been able to build a library of helpful and informational videos detailing DLG4 Synaptopathy, it’s effects, current research, and the impact of getting involved in the community. This page includes some of the more popular videos published so far as well as access to additional content for those interested. If you’re new to the community, these are a great place to start gathering information!
Find Us On YouTube
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SHINE Syndrome Documentary
In 2022, SHINE Syndrome Foundation was able to secure a grant for the purpose of developing a documentary film about SHINE Syndrome. After several months of planning, filming, and editing, the final video is here and available for all. Please take the time to watch and learn a little about families living with SHINE Syndrome, characteristics of the disease, and fundraising and research initiatives in progress to help those affected.
SHINE A Light On DLG4 - A Family Documentary
All About SHINE Syndrome Web Series
MAB member Alexandre White-Brown has developed a series of videos to describe some common facts about DLG4 and PSD95. Our intro series videos are listed below or in this playlist, or you can find all content on YouTube at SHINE Syndrome Foundation